Resources

Resources

Find Family Support

• Family Support – For family support and contact with other families see The Chromosome 18 Registry & Research Society website.

For Further Reading

• Syndrome Descriptions – For syndrome descriptions written for parents to help them understand the ramifications of a chromosome 18 change, see The Chromosome 18 Registry & Research Society website.
• Management Guides – For the Chromosome 18 Clinical Management Guides useful to clinicians
• Journal Publications – For a list of all of our publications along with the PDFs and lay explanations of each publication
• Research Articles – The Chromosome 18 Clinical Research Center writes a monthly research article for the Chromosome 18 Registry and Research Society.

Informational Videos

• FAQ Videos on Youtube – For answers to frequently asked questions about chromosome abnormalities  and videos on current research see our YouTube channel.

Prevalence of the Chromosome 18 Conditions

	Number per 100,000 births	1 per number of births	% of births
18q-	1.8	54,764	0.018
18p-	1.8	56,336	0.018
Ring 18	0.33	300,129	0.0033
Tetrasomy 18p	0.16	625,000	0.0016

Based on data from Wellesey et al., 2012 and the Chromosome 18 Clinical Research Center